Saturday, November 28, 2009

Walking with gratitude

Welcome and greetings! Iknow I've let a few weeks go by; due to side effects/illness like... Having cold after cold, catching pneumonia (medicine & a full week in bed turned that around) and as I mentioned earlier in another report, developing that bacterial infection called Clostridum difficule infection (which is an intestinal/gangrenous infection caused by intestinal bacteria getting out of whack).Anyway! I can also report that I've had to temporairly remove myself from college. This was very sad for me. I love going to college. I missed out doing it earlier in my life due to my alcoholism & drug addiction issues that were active at that time in my life.I love school! But for now, my health must take precedence. Too many germs there for my body at this time. Plus, in the last few weeks (most of November) I've had an MRI, a bone scan, xrays, and a ct/pet scan of my whole body and halleluiah! Everything is either looking normal or, for my liver lesions - 2 of the 3 are completely gone and the 3rd one (the size of my thumbnail) is "less conspicuous" meaning it is starting to disappear! I'm saying with faith in my heart that I believe God is healing me through this with the help of people and faith. I have become a tad better, through this cancer journey, at trusting in God that the "net" is there to catch me,even though I can't see it, and sometimes I can't feel it, but I've learned better to "Let go and Let God" and also to accept His will for me, no matter what. I believed from the beginning that this was a journey to "grow" not "go" even on fearful days - my best defense is still asking "God to help me deal with this". It always restores my heart and mind when I talk to God, because I believe in Him. I trust in Him; that His will is the will I must follow. My will alone can't always do what I want-unless its aligned with God's. That's also how my chemical recovery works today too.

And on another note, Thanksgiving is a wonderful holiday to remember, express and appreciate all the bounty in their lives. I've been homeless before in my life...and I was still able to find gratitiude in the organizations that feed the homeless, the churches that let us sleep on a cot for one night at a time, for having access to showers, laundry etc. When my house burned to the ground in 8 minutes because of the propane company's error; my immediate thought as I first saw it was not for my things - but for "my people - my child & best friend" and as soon as I knew they were alive and okay I said "thank you God, I'm good...even though after those 1st few days, I heavily mourned the loss of two cats, family heirlooms, my childrens babybooks, birth videos, my beloved books, and so much more. But I knew immediately God had saved exactly the most important, most irreplaceable, most vaulable things - the people I loved. Period. And, as hard as it was to mourn that, struggle to become "not homeless" after that, still be a mother, still function through depression for several years - my belief in God was strengthened through that tragedy. I began to learn that God was my friend, my heavenly Father who loved me and was carrying me through a horrible time in my life. And with this second time around with cancer, boy!! Don't I have a deeper faith now! How fortunate I am to have opportunities like these to grow my faith and my relationship with God. I used to think, years ago, "poor me!" and "why me!?". Today, I don't think "lucky me!" but I do say, "okay, here we go, another time to grow, trust in God and hang on."

Acceptance comes with faith. Gratitude does too. Thanksgiving is a special opportunity to remember all the things, people, situations, moments, etc that we should be, and/or, are grateful for. I feel blessed to be alive, to be sober and with my children every day. I am grateful for my amazing family. I am thankful for my awesome friends that walk with me on all my journeys in sobriety, through cancer, or any other thing that feels scary or hard. I appreciate all that I have in my life today -- and what I don't have in my life too.

As they say at my place of worship, "God IS good, all the time. Be at peace, practice acceptance and believe in the power of your personal energy and your Higher Power, whomever you choose that to be.

With Gratitude for All -
Elizabeth Gregory

Wednesday, November 4, 2009

Time Goes On

Hi everyone! Wow! I haven't written anything since September 22! And why is that? I've been sick with various side illness during this whole time. I attached a link for any of you to see if needed, of one of the tougher illnesses I was/am still fighting off. That was a wretched disease, I tell you!! Disgusting and painful! And very serious/life threatening too.

I have learned that I have a high pain tolerance for my body with the onslaught of that disease. I had it for about 2 1/2 weeks (maybe 3) before I sought help (from the amount of pain, explosive cramping I was having). I should have sought help about a week and a half earlier than I did (when my bowel movements didn't look normal anymore). By the time I did, they almost had to hospitalize me! Moral? Get medical help in the beginning & don't wait! It could kill you if you wait.

I also had two more colds during that time; I'm still fighting a sinus infection. The side colds are a real bummer! Really hard with 2 kids to care for too.

So, that's my wisdom for today. I'm starting to feel better, but, here comes my daughter with a sore throat so we shall see.

Oh yeah! One other thing - I entered some of my art (1 painting & 1 photo) in an Art Contest locally on the central coast here; one I can win some cash if I place...will know this Sunday.

And lastly, my CA-15 went up slightly from 40 to 52. That's the wrong direction - we want it to go the other way (down to under 31). At first, I felt very alone, very, very disappointed, very angry and sad. I almost felt like, "that's it!, I'm actually dying!" Talk about a drama queen, a severe reaction to a small hurdle really. Then I decided to look at it as, "just a bubble of cancer cells bursting (cause that happens and that makes the #'s go up briefly). So, I changed my thoughts and perception. I could've chosen to let that defeat me, instead (after that first few days of wallowing), I chose to turn it into a positive. Everyone has a choice ike that every day, on anything. I'm still fighting my disease... How about you?

With Gratitude for All -
Elizabeth Gregory

Tuesday, September 22, 2009

By the way...

Just forgot to mention that I finally received the free "cancer killing" game, called Re-mission, from HopeLab.

Haven't tried it yet, but I will soon. Will let you know my review, asap.

Thank!

With Gratitude For All,

Elizabeth Gregory

Time Flies When You're Having Fun

Wow! It's been a slow month of postings, hasn't it? Mostly due to fighting off secondary infections, which seems to have been ongoing since our return from Disneyland at the end of July.

We've been sharing this awful sinus infection on and off through August and September. We are all on anti-biotics now and slowly recovering, thank God!

I tell you what, having colds with chemotherapy is so much harder to deal with than without. That's probably an obvious statement; but the side effects you feel with a cold seem much more magnified, than regular cold syptoms - as when your not having chemotherapy.

Anyway, it's been a struggle being sick w/various colds, while going through chemo, taking care of my two kids...thank goodness I have wonderful family and friends to help support us in our routines.

So, back to my results from my tests that I promised to give further discourse to. Good news! Dr. P said unequivocally, that the dropping cancer markers on the CA-15 test, for my situation, definitely means the cancer is being killed off! Ya-hoo to infinity! My marker on this test is now at 57, the normal range is 0-31.

Regarding the MRI results; this showed I still have 3 "subtle" lesions on my liver and that my bones are still "mottled" and "abnormal". So, more chemotherapy to be sure that we clean up my liver, and do as much as we can for my bones to repair themselves, (which can take years to repair themselves) per the doctor.

In the meantime, I told him that while chemotherapy was a "pain", I was loathe to stop it because of my desire to do all available to ensure success. He indicated that we can do chemotherapy, on that note, for as long as my body can tolerate it. Hey,I'm game! I'd rather do this now as long as possible; hopefully for the very last time, rather than quit early just to maybe have it come back again. Who wants to go through this yet again? Not I! I've done this twice now, I'm not looking for a third time, that's for sure.

I mean, I've already got about zero hair, less than 1/2 of my eyelashes are left...why not go all the way while the "chips are down" in the beauty catagory already? I hope, with God's grace, I'll never have to look at my "chemo beauty" ever again. God, really, has blessed me with a wonderful doctor, family and friends who pray for me, my own prayers (because for many years - I didn't pray) , and His Grace of giving me another challenge. One that I've learned, and am still learning, to walk through.

People tell me "You're so strong" but that is coming from God, I'm sure. I lean on God just like any other close, personal friend, in this situation would. God is my dearest, most wonderful friend.

Thank God too for good doctors who know what they are doing. If you don't think you have that, go get one! You are your own best advocate, after all.
And, doctors are humans too. Some are more knowledgable at what they do. Some don't offer everything there is to know, even an excellent doctor, such as mine. Read the story below to get what I mean.

My dear friend with anal cancer, who appears to also to be beating that cancer - she went (just in case) to San Franciso to doctors at the main hospital (university connected?, not sure).

Anyway, she found out our Dr. was right on about every thing he was doing for her. Yay!
However, they did find out that for follow up checks over the next few years, she should get biopsies of the site in order to be sure. Turns out our Doctor had not mentioned that, either because our area has no one to refer her to for that, or, no one the doctor has confidence in. So, he was relieved to know she was able and willing to go to SF for that as needed, that she would have that level of follow up. It is interesting to note that our doctor, who is so thorough about what he does share with us (which is a tremendous amout), didn't mention this to her, because it's not available here. Please people! Remember every opinion can offer something; second opinions can be extremely important. Or confusing, too.
Remember, go to the best, and only the best. Specialits in their area.

Last thing, my son turns sixteen this Saturday! I so want to do something wonderful for him; kayaking off the coast in the ocean kelp forests, or bi-plane rides at a local place we have here, or something he suggests. Zip. No. Nada. Typical sixteen year-old who has a girlfriend! Can't do anthing without her. Which is ok with me, she's a decent girl. So, having cleared kayaking with the girlfriends mom, then he still doesn't get behind it. She's excited to go, he's not. C'mon my son! I love him with all of me, yet all he wants? An X-Box 360! Something to sit in his room with. Again. (We have a very old X-Box he has now). Frustrating to appreciate life and adventure as much as I do, and have a son, who (at this point in life) juat wants to play video games. Geez. I only hope this is just a stage.

Well, that's enough out of me!

With Gratitude For All,

Elizabeth Gregory

Sunday, September 6, 2009

Well, the cancer is going down!

Well, well, well! Some very happy news to present today! My tumor marker test (CA-15) shows my tumor (blood) level is now @ 57!! This is a big deal because I started out at 263, and, the "normal" range is 0-31!! Yahooie oooie oooh!

This upcoming Friday I will be finding out a lot more because I also had a MRI done last week, that in conjunction w/my blood test results, I will get a better feeling about the whole picture. I still have 3 "subtle" lesions on my liver (levels of which have gone back up again but slightly), and the MRI has repeated the mottled multi-level changes in my bones, but that has been like that since I before I began treatment -- so we'll see what Dr. P has to say about it all. Will update on that after this Friday.

Also, really glad that I kept the couple classes I wanted to take. It's hard, they make me tired, but I am so inpired by the basic photography class! And, math is a necessary evil. One thing that isn't so good is that with being part time, and in California, the grants have gone way down! Makes it that much harder to make it at school (especially w/photography which is a more expensive class...good thing I don't have two art classes or it just wouldn't work out!)

Anyway, I love school; it takes my mind off everything except me trying to absorb & do my very best & move on towards that goal of a degree. I don't want to be the only one in my family without one. I had a very bad time when I should've been going to school when I was younger because I was blinded in many ways by my alcoholism/addictions and lack of faith/contact with God. Thank God I don't have that problem today, and I get to me more of me today-who I really am, and always wanted to be. I'm not quite where I want to be of course, but a step at a time, I will be there.

And, let me say again, how much I appreciate the friends and family that I have. I am so fortunate to have the people in my life today that I do. I have deep gratitude for everyone in my life. One thing about having cancer, for me, it has brought me new friends, closer to old friends, and dearer to my family/I appreciate my family that much more every day.

God is great! Life is good! No complaints here today.

With gratitude for all!

Elizabeth Gregory

Sunday, August 23, 2009

Busy, busy, rest, rest, busy, rest, busy, rest!

National Geographic News, August 19, 2009 is a very interesting article about how cancer cells are protected from dying off properly, by anti-oxidants, a new study shows! Just wanted to get this mention out of the way first & foremost because I think it is important for everyone to read. Unfortunately, probably cause I'm a bit tired, I couldn't figure out the link info properly. But, you can still find it online at the info/date above.

So, now to busy, busy, rest, rest! I haven't written since the 15th I think (?) of this month because ... Here's why!

A week ago tomorrow, I started college classes again; although I reduced my classes from four to two. The two I kept are just the right amount of work, I think, for me to pull off in my chemo state of being.

I kept math and basic photography, both of which I am excited about, bit especially the photog class because of it's creative/art spark that I get from it (already!). We use 35 mm cameras, develop film, learn to enlarge film, etc. Really exciting stuff for an artist because I can see myself using film to create compositions to use to paint from, as well as using film to express my art in a completely "film" way. Really great class! Really excited! Really! :) In cutting down my classes, I now only have school two days a week, instead of four, and that's really good for me too.

Then, Wed. I had a "partial" infusion; no chemo because white blood cells too low...but hey! at least it wasn't due to my liver, which is now almost back to normal. Thank You, GOD! Looks like we'll try for Taxol again, this upcoming Friday.

Thursday of last week, my daughter started school. And, Friday, I had surgery to repair my port, which had somehow turned itself around and in so doing, rendered itself un-usable. Having a port is important and extremely helpful to me because it protects my left arm/veins from over-use and more scarring from constant use. A port is "tucked" under your skin, attached to a large vein in your chest (for me, at least). It's actually just barely visable, as a lump under the skin. It's an entry way for access to a vein which would obviously be unreachable for chemo/iv use.

This is necessary for me to help protect my left arm vein, as I said, because my right arm is "off-limits" for needles, i.v.'s and even blood pressure machines. This is because I had lymph nodes removed in my right armpit six years ago when I had my mastecomy. Removing lymph nodes leaves the limb that is "affected" by the loss, susceptible to Lymphedema, which is a horrible, enormous swelling of a limb that gets clogged in draining normal fluids, due to loss of lymph nodes. Somehow, squeezing the arm (in my case) with blood pressure monitors, of putting needles into it, can create the condition. So, I am very careful not to use that arm for any of those things. This leaves my left arm for everything which damages the veins after a while, from scarring due to over-use. Therefore, I needed the port fixed asap.

I am very, very, very sore from these surgeries. The one to put the port in, I had in June, and that was extremely painful for about two weeks, with the third week being just really sore. I sure hope it doesn't take that long this time, as it hurts just to bend over to put on my shoes. Because it's in my upper part of my left breast/chest area, every jiggle hurts! I have been resting solidly since Saturday mid-day, when I had to get my daughter from her gymnastics class. Luckily for me, my helpful sister took her to class, and my other helpful friend Dinah, helped me drive up there (about 30 min away). Both were a great help in doing that! I am thankful to have helpful, caring people in my life.

So, we skipped church today because I'm in pain, tired and resting...as much as is possible with a ten year old and fifteen year old, who want to keep moving and doing stuff and want me to participate. I have to constantly remind them of why I can't. This irritates all of us equally; they hate hearing me say "no, I can't right now" and I get tired of saying it to them. Heavy sighs all around. I often get support from friends, and family, to keep them busy for me while I rest, but I guess ot just isn't often enough for them. This is surely a lesson in patience for us all.

Even my dog, Serenity, does the heavy sighs too! She is a sweet, kind, patient and loving dog--willing to do whatever is asked of her, even wait, wait, wait for her regular daily walk, which hasn't happened this week for several days now. She is laying in her bed right now, and I just heard her do a heavy sigh. Little cutie. She is half white lab, half golden retriever. She looks all white lab except for her birth defect tail (which made her a freebie) because it is only about 3 inches long and looks like it had been docked vs born shortie. In every other way, she is a perfect girl. She loves my 3 cats and the kids and everyone she meets -- Miss Congeniality! We are blessed to have such a good,sweet dog. She still guards the house and grounds for all her sweetness, our great dog!

So now, it is a resting day and I am going to go rest again. Just wanted to keep in touch!

With Gratitude for All-
Elizabeth Gregory

Saturday, August 15, 2009

Interpretations and Musings

First of all, I recently read on a CNN Techology article about a new "cancer game" called "re-mission." The focus of the game (it states it's for teenagers suffering from cancer/going through treatment/helps to visualize killing cancer cells while playing the game) is to kill cancer cells as the main target; to help teenagers to visualize and "participate" in killing the cancer cells in their bodies by playing the game. You can download it for free and/or order a free cd to be mailed to you (which I did because I have a Mac and it's a PC based game; which means I will have to use it at a friends' house). The website listed in the article is: http://www.re-mission.net/site/community/.

I haven't tried it yet since I haven't gotten the cd yet, but what an incredible idea and.... DUH!!?? Why hasn't anyone thought of this before?? Brilliant of those who did put it together. It certainly can't hurt, only help, I think. Anyway, I am excited about trying it out. I may not be a teen, but I can certainly benefit from a "let's kill those damn cancer cells" game as much as the next person.

Also, I am a budding artist. I recently submitted a couple of pieces to an "art show" (more of a submission of art for shared viewing vs awards or competition) at my local church. One piece was a painting which was well received, and the other was a smaller, two piece ceramic scuplture. This piece was "lost" for a few weeks, in that it didn't show in the art exhibition and at first, no one was sure where it went. I was able to locate and retrieve it successfully a few days ago, with the help of one of the art dept. gals.

It turned out that it was "excluded" from the exhibition because it is a sculpture of a faceless, naked woman, which was based upon a 25,000 year old figurine known as the "Venus of Willendorf." The original figurine is thought to be a fertility totem, or a figure celebrating a healthy, potent, female in caveman days. The breasts are over-large, droopy/saggy and prominent because of their size compared to the body and the skinny, almost non-existent, twiggy little arms that barely attempt to lay over the top of the breasts. The stomach is large, pregnancy/well-fed appearing, with large round thighs, cut off at about the knees. The vagina is noted as a small slit, as are the buttocks-again, large and round. She is faceless, with almost no neck, and rounded dots covering her head as her hair. In reality, I believe it is approximately 2 inches tall and a reddish, brown clay color.

My sculpture mimics this pretty well, except that it is about 4-5 inches tall and I have "removed" one breast - showing a "Frankenstein-like" scar covering the missing breast on the chest. I also made it with a simple coiled vase, that is purposely made to enhance the idea of the pieces being very old, and made by cavemen-era artists.

Anyway, when I let the gal know that I had successfully retrieved the pieces with her help/guidance, the truth as to why they had been missing came out.

I don't know what the other art staff thought of my piece, but when she shared with them that I was/am a 6 year cancer survivor and fighter - going through treatment again - I guess "their heads hung low" according to her.

Somehow I guess they saw it as something quite different than a prehistoric breast cancer victim. My title for the piece is "Another Surviving Venus," and the show's focus was on the body - of humans, Christ, your interpretation. I was sort of amused at the reaction; that it was censored that way, and the "guilty" feelings that were apparently felt upon learning the story about my piece's creation and comparison to the prehistoric piece, and breast cancer survivorship.

People are funny, aren't they? Art is in the eye of the beholder. And your eye sees whatever you see easily, I guess. Whatever you are hung up about, or find attractive or ... you know. My painting, in contrast, is a beautiful composition of the "victory" angel, several large California poppies, with patterns, repeated prints, in primarily teal/blue greens and golden browns and oranges. It is not offensive in any way (at least, not so far; it even won 2nd place in local show).

I was intrigued by the whole turn of events and things like that always open my eyes, make me think and mull things over. I think about how we are all similar, yet made so different by our experiences and interpretations of them...and how those initial views can even change over time.

I know for me, for example, learning forgiveness was a liberating, spiritual-growth inducing "tool". It was very diificult for me to accept that forgiveness - of someone who had violated me terribly, for example - was not only in line with what God asks of us, but was also the healthiest, and kindest thing I could do FOR MYSELF. Forgiveness is not "just for the other person" - it is really for you to trust God to handle that person and take yourself off the hook, of guilt, anger, shame, pain - whatever feelings you're having - and let yourself move on. To me, forgiveness is saying to that person (directly or not), I forgive you because I cannot hold these painful feelings close to my heart anymore, and I trust God to work with you as He sees fit. I forgive you because it's what God asks me to do, and because I believe in God to help me heal once I have done this. And by not forgiving, I continue to give that person who wounded me, permission to continue wounding me. I cannot have a true relationship with God, and I cannot heal, if I don't forgive. I cannot grow if I won't "let go".

Anyhow, this whole thing with my art pieces took my mind on this direction and so I am sharing it with you.

I'm glad for experiences that help me grow, even if at first, I don't understand or they are painful. I trust my God today, I believe He will carry me if I need Him too; I just have to remember to let Him.

With Gratitude For All-
Elizabeth Gregory